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Trust fund to help family with long-term hospitalized infant
Having a newborn hospitalized for almost a year is a long time.
That’s the story of Carlin Banach, who was born with Down syndrome to a Moose Jaw family. He has been in the hospital since he was born on Dec. 5, 2012 — more than 320 days so far.
Angie Neuberger’s second son, now 12, also has Down syndrome. When she heard about Banach’s difficulties, she wanted to help.
“When (our son) was born, we were in the hospital 18 days. I just can’t even imagine what they’re going through emotionally and financially,” said Neuberger. “My heart kind of went out to them and I thought, ‘Well if there’s any way we can maybe try to help them out a bit and take a little bit of that stress off of the financial side, (they) can concentrate a little bit more of getting their little guy well and home.”
About two weeks ago, she organized the Carlin Banach Trust Fund at Conexus Credit Union and is taking donations to help Banach’s family financially.
Banach was born at 30 weeks and he hasn’t been able to go home yet. So far, he’s had five surgeries for his heart, his bowel, his diaphragm and he had a tracheotomy. Neuberger said he is in the Royal University Hospital (RUH) in Saskatoon and has been in hospitals in Edmonton and Regina also.
Neuberger said the people at the RUH are trying to get him back to the Stollery Children’s Hospital in Edmonton for extra care, but first he needs to be stabilized.
“The poor little guy has been all over,” she said. “It’s kind of been two steps forward and five steps back. He’s just been up and down and having a really hard time.”
Neuberger said she first heard about Banach on the Saskatchewan Down Syndrome Society Facebook page. She added when she had her son, she discharged as a maternity patient after three days.
However, as her son couldn’t leave the hospital yet, she had to stay in the hospital or find a place to stay as well as pay for meals and other expenses. Neuberger’s son had no major heart problems, but he did go home on supplemental oxygen for vital air supply for four months.
She said she started the fund because she can empathize with the Banach’s family and their struggles, although what she went through was “nothing like what they’re dealing with.”
“I hope all turns out well for them, but yeah, they sure have had an unbelievably … long, hard struggle,” said Neuberger. “He was starting, I think, to improve, but now he’s kind of backslid a bit.”
Further, Banach is too small for his age.
“They’re just had way more than their share of challenges and stresses,” said Neuberger. “I sure hope he can get home before his first birthday.”
To mail donations, send them to Conexus Credit Union, 400 Centre St., Assiniboia to the attention of Neuberger. Make cheques payable to Carlin Banach Trust.
Follow Lisa Goudy on Twitter @lisagoudy.